Thursday, January 18, 2018

Isabeau Hope Goodman's Story


When she was only 8 days old, Isabeau Hope Goodman was already undergoing her first open heart surgery. Her family practically lived at the hospital for the majority of Isabeau's earliest years. It seemed like hope was gone. However, her family refused to let go and continued to believe. Isabeau's story is the perfect example on the power of bravery. Thank you so much for sharing your story! Read Isabeau's inspirational and miraculous story below.




The dark hospital room is filled with blinking lights, poles with pumps pushing medicines through plastic tubes into babies. It is Christmas Morning 2007 and looking down, we can see our newborn daughter's heart and lungs through a thin yellow film.  
She is eight days old and is recovering from her first open heart surgery. They cannot close her football shaped chest incision until the internal swelling goes down, and so there she lies. So small. So new. Her golden heart exposed to the world for five days. In a minute we will hear that it is time. Isabeau's first Christmas present will be a bright new scar healing on her chest and we cry with joy.

I remember back when that was our main concern: "will the scar be big?” We were new, like our baby daughter. This was before we spent months living in the hospital hoping she would just live through the night, watching the bed under her turn red as blood seeped out of her neck, at home pushing a foot-long tube into her nose and stomach to feed her with a syringe because she did not know how to suck a bottle for four months. Before her 28 therapies a month, 18 syringes of medication a day, elevating her when she slept to keep stomach acid from burning her esophagus, a helmet to reshape her flattened head, specialists for her bent spine, specialists for her misaligned teeth, hearing tests, a dozen intelligence tests, special education. Before her second and third heart surgeries. Before watching her wheeled into surgery, and you say "see you in a few hours" not knowing if the last thing you say to her is a lie. Before watching your daughter's life, reduced to plummeting numbers on a monitor, nearly cease as the nurses and doctors say 'it's an acute desat -- probably a blood clot keeping blood from entering her lungs -- we can't fix this in time'. 

And through that she survived, and we survived because of the strength and caring of others, helping her, helping us. Caring anonymous people, helping strangers. 

I am writing this to show you that during these times the world can become unbearably dark and isolating. It is through the smallest kindnesses that we survived. It feels like the entire universe has conspired to steal your dreams of a happy family. It feels like every doctor's visit brings more bad news, more things that are wrong with her, more things she will never do like 'typical' little girls and you have even more work just to keep her alive. When you live in the hospital, you sleep on vinyl chairs called 'beds' under thin sheets, going through the most emotionally naked moments of your life, half-dressed and ten feet from a noisy nurse’s station in a room with 3 other heart babies crying, trying to be awake and intelligent enough when the doctors finally make rounds, and your hair is sideways, and your face is flat and red from the vinyl pillow, and you almost got two hours of sleep last night between attempted feedings (every 2 hours, an hour and a half each), and if you don't sound coherent and ask intelligent questions the doctors will dumb down the news, and you will learn nothing. And if you learn nothing your daughter's chances go down. Night becomes day becomes night in always lit hospital hallways. Every few days you drive home to get new clothes, and on the way back suddenly find yourself driving through sobbing tears on the 101 until you arrive at the hospital, park your car and go up to The Room looking happy and optimistic for your tiny baby. It will be ok, you say. But it is horror. It is every nightmare scenario. Our first surgery, we got to know four babies, half of them didn't make it. It is very real, it is every hour of every day and it never, ever goes away. And we the 'hospital families' will show the outside world our happy faces. We will let you believe the movies about sick kids and the inner strength that it builds in parents, but it is all a cover. Inside we are shattered and exhausted. Broken and often just getting by, tired to the bone. Tired of worrying, of working five times harder than other parents just to keep your kid from falling so far behind hey could never catch up. Tired of hoping... hoping that she will live long enough to have a first kiss. 
But... we learn that we are not alone in this. I remember when we first saw her laying there as a couple, she was covered in tubes and wires and tape, we were so happy and sad, we just held each other shaking and crying softly. That day a quiet gift of tissues placed near us by a CT-ICU nurse was a ray of bright light. Weeks later, a donated plastic wagon let us tour the world outside her room, O2 tank and med pumps and monitors in tow. She smiled  as we pulled her down a hallway to where the sunlight could fall on her face for the very first time. After her third surgery, a volunteer's quirky sense of humor made my daughter grin and walk, allowing the long tubes sticking out of her belly and chest to drain fluid from around her lungs, so she could breath. So many moments. Writing about these memories still brings me to tears and I am so very thankful. 
When she was 3, she got to see Starlight in action when my boss Ted Price donated a new game center to Children's Hospital Los Angeles and she helped cut the ribbon (mostly, she IS just three). Our company, Insomniac Games, has generously given a game station to a different Children's Hospital for several years now, and usually to hospitals even more needy than CHLA. Afterward I got to show Ted and Angel Montanez of Starlight around the hospital sharing Isabeau's story. Floor by floor, so many stories. They were amazed at all we had been through. Ted wondered how we survived and I told him flatly, with the love and support of amazing people, most of whom were strangers. And we had it easy. Some kids never go home. Some have dozens of surgeries. Some never leave their wheelchair. Some have no cure. And so we wish to thank those doctors and tireless nurses for never giving up hope. Never ceasing to inspire us and even the difficult task of telling us the hard truths. Simply amazing people, doing the impossible every day. Isabeau is nine years old now 3555 days. 

 If you are reading this, you have helped many families who can't thank you themselves, so I'm here to thank you for them. You change lives. You make a difference.  Thank you. 

-Craig, Julianna, Isabeau and Isaac Goodman. 



It amazes us everyday how bravery can save lives and inspire change. We wish nothing but the best for Isabeau in the future. Read more stories like this at www.bravelets.com/brave-stories 

91 comments:

  1. This article is really good for all newbie here, great way of explanation and your post gave me a new perspective. Livewebtutors provides you a powerful weapon that can help you to change your academic pathway. We provide all kinds of academic assignment help to the students at the cost-effective prices.
    Visit us@ Assignment Help

    ReplyDelete
  2. At StudentsAssignmentHelp.com Our team is offering best and high-qualified team of finance assignment help. The experts in our team have knowledge in various academic disciplines and such as English, economics, history, management, IT, law, arts, nursing, hospitality, etc. So grab the best assignment offers today.

    ReplyDelete
  3. طرح توجیهی یک گزارش کامل است که توجیه‌ پذیری یک طرح را در ابعاد مختلفی می سنجد. این ابعاد شامل بعد های: بازار، فنی و مالی است. که در این طرح مورد بررسی و کنترل قرار می گیرند.
    گزارش طرح توجیهی یا Feasibility Study Report ، ابعاد مختلف یک پروژه را که شامل سه بخش بازار، فنی و مالی است، را بررسی میکند. می خواهیم با نحوه ی بررسی این سه بخش به شرح دانلود فرمت خام طرح توجیهی ادامه دهیم:
    تجزیه و تحلیل مالی: بررسی این بعد به منظور بررسی و تجزیه و تحلیل ابعاد مختلف مالی و سودآوری طرح توجیهی است.
    تجزیه و تحلیل بازار: در این بعد ابعاد مختلف بازار محصول طرح توجیهی بررسی و آنالیز می شود. شامل بررسی: کمبود محصول، بازار هدف مناسب محصول، عرضه محصول، میزان تقاضای محصول و





    دوره آموزش کامفار


    دوره کامفار در محل شرکت ها


    فروش کتاب آموزش کامفار


    فروش نرم افزار کامفار


    نرم افزار کامفار فارسی


    یادگیری نرم افزار کامفار


    نرم افزار کامفار

    ReplyDelete
  4. Students always need assignment help services. So we provide online assignment help service. We have many experienced experts to write your assignment. Our experts are highly recommended in Australia. You can buy our service at Australiaassignmenthelp.com.

    ReplyDelete
  5. Nice post. Get all your assignments done up to standard and on time by the best in business. Complete my assignment team handle all your different types of academic services.

    ReplyDelete
  6. This blog post reveals a secret of how to easily hack someone's phone. Check it out, guys!

    ReplyDelete
  7. Nice post. I was checking constantly this blog and I’m impressed! All remark is the one of the best website where you can get all type of business update, education info , travel and tech all type of info on one platform.

    ReplyDelete
  8. Thank you for sharing this informative post. theassignmenthelp.com.au is giving assignment help to students.we are already trusted by thousands of students who struggle to write their academic papers and also by those students who simply want Buy Accounting Assignment Help.

    ReplyDelete
  9. Great information on your blog content, thanks for taking the time to share with us such a nice blog.
    Assignment Help
    do my assignment online

    ReplyDelete
  10. Sharing information with others is good. Good work! Always fascinated with these kind of content. I enjoyed reading the article.

    ReplyDelete
  11. I appreciate this write up. Sharing information with others is good. Good work!

    ReplyDelete
  12. I really appreciate your blog.I have ben using malwarebytes for secure my operating system.But sometimes malwarebytes web protection won't turn on.I could not undersand about that problem.If anyone has any solution then suggest to me.

    ReplyDelete
  13. It is always interesting to read articles with good contents.

    ReplyDelete
  14. Myassignmenthelp review: No matter how difficult assignments you assign these guys to prepare, they provide assignments of the standard structure with proper quality content. Whoever is looking for the best assignment help, just go with it...

    ReplyDelete
  15. Especially during those crucial times when students require and search for admissions essay help and ‘tips on college essays’ on the internet, it becomes strategically imperative to reevaluate one’s own personal development in an ordered way. If you need assignment help, just ask us to do my essay. Very often students fail to deliver essays that keep a fair level of balance between their personal and extra-curricular achievements and their academic development. Know more about information technology assignment help.

    ReplyDelete
  16. Desklib is an homework help online where students can find solutions to assignments, essays, dissertations, case studies, research reports, reflection writing and a lot more.

    ReplyDelete
  17. Please let me know if you're looking for a writer for your site. You have some really great posts and I feel I would be a good asset. If you ever want to take some of the load off, I'd absolutely love to write some material for your blog. Please send me an email if interested. Thank you!
    Example thesis Statement
    Apa Format Paper
    Apa Essay Format
    apa for dummies
    apa research paper outline
    Thesis Statement Template
    thesis example
    thesis examples
    thesis creator

    ReplyDelete
  18. Are you unable to understand what’s going on with your Roku device? Why your device shows Roku error code 016? Looking for Roku helpline number? Call us anytime on our toll-free number for instant solution USA/Canada: +1-888-480-0288 & UK: +44-800-041-8324. Our technical experts are 24/7 available to solve your queries instantly. Get in touch with us.

    ReplyDelete
  19. Alternatively, you can seek guidance from our experts on oxford referencing style in the UK. Our experts are perfectly aware of where to use the comma and period within the oxford referencing and bibliography. Citing different types of sources can be a daunting task that many of you may not have enough clarity about. Our team of in-house developers has invested sufficient time in developing an improved and advanced OSCOLA referencing generator. The state-of-the-art design and built of the application work seamlessly, thus ensuring a completely lag-free experience. Our MHRA referencing generator takes care of the whole citation and referencing process for you.

    ReplyDelete
  20. Is your Roku remote lost or damaged? Are you unable to connect Roku to Wi-Fi without remote ? Call us anytime on our toll-free number for instant solution USA/Canada: +1-888-480-0288 & UK: +44-800-041-8324. Our technical experts are 24/7 available to solve your queries instantly. Get in touch with us.

    ReplyDelete
  21. مقابر للبيع
    مدافن للبيع

    مقابر للبيع و مدافن للبيع تقدم شركة الرحمن الرحيم مقابر ومدافن للبيع بالعاصمة الإدارية الجديدة ومدينة الرحاب ويوجد ايضا بمناطق كثيرة

    ReplyDelete
  22. This is a very informative piece of work. Visit www.edussay.com for proffesional homework help.

    ReplyDelete
  23. Thank you for this post. Found it very informative.

    https://www.treeremovalserviceyonkers.com

    ReplyDelete
  24. Nice article. Good job.

    https://www.housepaintersyonkers.com

    ReplyDelete
  25. Thank you for this post. Found it very informative.
    Bronx accident lawyers

    ReplyDelete
  26. Whether it's your first time tasting, or you've already developed a refined tasting palette, wine tasting on Long Island is a real treat for everyone. In addition to wine tasting, many of Long Island wineries offer tours of their vineyards and winemaking facilities, special events hosting, delicious food to pair with your tasting choices, and live entertainment seasonally. A perfect destination for everything from weekend getaways to wedding receptions, Long Island Wine Country offers a unique piece of Long Island culture and heritage that you can't help but enjoy more with every glass.

    User Craig wrote: glad you deleted it. Was plainly silly. When I first attained Platinum, I was earning a lowly MK Outlet Online IT trainers salary. Optometrists and the association have been making efforts to make sure that the public is educated Jordan Shoes For Sale about optometry services Ray Ban Outlet and products, and Nike Air Force 1 Cheap Outlet reminding them how technical they are. It seems people can often forget because Coach Outlet Clearance Sale they look quite simple, a pair of glasses, but the technology that goes into that, the lens designs, the lens materials, the fitting Cheap Michael Kors Handbags of Coach Outlet Online the lenses to the frame and then the fitting of the frames to the patient face is very technical. Inner city optometrist told The Age that while some things, such as a box of contact lenses, might Best Yeezys be cheaper online, e tailers were not a serious threat...

    ReplyDelete
  27. Get some amazing Letterkenny Quotes and sayings here. Get some relief and have fun read
    with best letterkenny quotes

    ReplyDelete
  28. Thanks for the great post! I feel for your pain as well as your story. Thank you for sharing.

    anheim pool cleaner
    antioch drone photography
    thornton home inspections
    thornton photography

    ReplyDelete
    Replies
    1. Thanks, Anne wonderful services btw, let me know what you think of: https://www.garoofingpros.com/

      Delete
  29. Bootstrap Studio Crack 5.2.1 is a powerful program for creating beautiful websites using the Bootstrap frameworks. Bootstrap Studio PC software, allowing you to create stylish websites.
    Autocad 2021 Crack
    Photopia Director Crack
    Adobe illustrator CC 2019 Crack

    ReplyDelete
  30. Your work really inspires us. Keep up the good work and we will continue to support your web posts.

    https://familylawyersreddeer.com

    ReplyDelete
  31. Your work is great its inspiring to see. That's great stuff.

    ReplyDelete
  32. Awesome stuff here! Love to have some myself!

    ReplyDelete
  33. Erectile Dysfunction is the inability to get and keep an erection firm enough for s*x. Encountering erection trouble from time to time is not actually a justification concern. In case erectile brokenness is a ceaseless issue, in any case, it can cause pressure, impact your confidence, and add to relationship issues. Issue in getting or keeping an erection can in like manner be a sign of a medical problem that needs therapy. If anyone suffer from ED he always looking for on google like Trimix Injections, sildenafil 110 mg, sildenafil 110 mg troche, where to buy tadalafil online, ed injections trimix. If you are stressed over erectile brokenness, talk about with your primary care physician — whether or not you're embarrassed. Occasionally, treating a basic condition is adequate to turn around erectile brokenness. In various cases, solutions or other direct drugs might be required.

    ReplyDelete
  34. Thank you for this post. I found it helpful.
    Nyack Court Reporters

    ReplyDelete
  35. AMAZIING ARTICLE THANKS FOR sharing exactly what i was looking forjuice wrld merch shop

    ReplyDelete
  36. Trimix ed drug is a recommended medication that comprises of three primary fixings. These three medications are phentolamine, papaverine and alprostadil, and each one of them assumes a fundamental part in treating the state of erectile brokenness. Trimix is shown in the treatment of guys with erectile brokenness. This injectable drug is for patients unacceptable for oral medicine. Buy Trimix Injections online as it is adaptable as per patients' prerequisites and assists the patient with accomplishing the best outcomes whenever taken in the recommended way and term and furthermore you can discover trimix available to be purchased on online drug stores.

    ReplyDelete
  37. If any student is facing any problem in solving the assignment question can take help of Assignment help. This team is always ready to support the students with there knowledge and support. The team is best ever. They charge very less from the student for there services. assignment help

    ReplyDelete
  38. I really like your post, I always like to read a quality content having accurate information regarding the subject. Thanks for sharing. It is such a very amazing post. 123 สมัคร

    ReplyDelete
  39. It's not just a matter of saying it, but it really feels that way. If you ever spend a few days in a hospital for any reason, it really feels like hope is gone and only a miracle can get you out of here. Assignment Writing Services

    ReplyDelete
  40. Very good customer service. I called and asked questions four times before I decided what type box to order. They answered my call every time without being forced to go through a recording. I received my order custom packaging boxes uk promptly, and everything is fine.

    ReplyDelete
  41. Extremely helpful information particularly the last part.
    I care for such information much.
    Overwatch Crack to be the most searched term on Google once the game is released. In consequence, gamers look forward to playing the new game as a result of its improved features.
    Overwatch Crack will become the most searched on Google once it is released. The improved features of the new game ensure that gamers look forward to playing it.
    BETTERNET CRACK is an excellent proxy software that allows you to use the internet without revealing your identity. With this simple, simple, and powerful software, you can use the internet anonymously to access all blocked websites that hide your identity.

    ReplyDelete
  42. Tiles Showroom Near Me – This is where the tiles are manufactured and once the production is complete; they are then shipped to the showrooms of the company. These showrooms are located throughout the country, in almost every city and the one near you will offer you a great selection of tiles as well as expert advice in selecting the right tiles for your home. This is where the tiles are also sold and once you've decided on the perfect tiles, they will be shipped to you!

    ReplyDelete
  43. Hi, I was wondering here for some exciting stories than I found a page where i found a stories that's look so good but i couldn't visit it after buying a StrongVPN Coupon Code with discount it was easy to visit and read it without any issue.

    ReplyDelete
  44. Massage therapy is a broad term that describes a variety of massage techniques. They vary in how they apply pressure, touch, and intensity.Visit body massage near me

    ReplyDelete
  45. Skin well being requires sustenance sometimes. Standard spa treatment prompts the shining and sound skin. Visit massage center near to me

    ReplyDelete
  46. They need toys that would permit them to creative and invigorate enough. All in all such toys ought to have an instructive viewpoint too. hot wheels

    ReplyDelete
  47. Outstanding material. I think I’ll use it for developing my business continuity plan Buy chocolate truffles Jeddah

    ReplyDelete
  48. Great job for publishing such a beneficial web site woon clothing

    ReplyDelete
  49. thank you for sharing this wonderful information with us i hope you will share more post in future. Signboard printing in Ajman

    ReplyDelete
  50. Even outside educational institutions, a person learns a lot throughout his life. Through life experiences and dealings and relationships with other people, he gains awareness of many ground realities. That's why I love reading blogs because I get to learn a lot from them. Assignment Writing Services

    ReplyDelete
  51. thank you for sharing this wonderful information with us i really found it useful, keep up sharing this wonderful information with us. Tv repair dubai

    ReplyDelete
  52. Wow, Isabeau's story is a shining beacon of resilience and the power of love! It's incredible to see how the unwavering support of family, friends, and strangers can profoundly impact one's life journey—wishing Isabeau and her family endless happiness and joyful moments ahead. May their story continue to inspire and uplift others! 💖

    ReplyDelete
  53. i have read this post and it is really amazing i hope you will share more in future so we can read it in future. Living Room Renovation

    ReplyDelete
  54. Wow, Isabeau's story is truly inspiring! Her bravery and the support of those around her show the incredible power of hope and kindness. It's amazing how even the smallest acts of generosity can make a huge difference in someone's life.

    ReplyDelete
  55. this is the very inspiring story everyone should listen this once. tv repair
    tv repair shop

    ReplyDelete
  56. I was deeply moved by her resilience and strength. Her journey of surviving cancer and her determination to spread hope and support to others through her jewelry line, Bravelets, is truly inspiring. Goodman's ability to turn her own adversity into a force for good is a testament to the power of human spirit and the importance of finding silver linings in life's challenges.
    Click here

    ReplyDelete
  57. I am truly inspired by her courage and resilience in the face of adversity. Her ability to turn her personal struggles into a platform for raising awareness and helping others is commendable. Goodman's determination to create positive change through her Bravelets jewelry line demonstrates the power of combining passion with purpose. coaching for job interviews

    ReplyDelete
  58. Great Post
    Unlock your career potential with CVWritingServices.ie's professional LinkedIn profile writers. Our experienced team will optimize your profile, highlight your skills and achievements, and create a strong personal brand. Gain a competitive edge and attract the right opportunities with a powerful LinkedIn presence.

    ReplyDelete
  59. thank you for posting this wonderful information with us i really liked it a lot. Refrigerator Repair in Dubai

    ReplyDelete
  60. i have been looking for something interested over the web and i just found your website. TV Repair Dubai

    ReplyDelete
  61. i find your post really amazing, keep up this. Carpenter Near me

    ReplyDelete
  62. well this goodmans story is very impressive i appreciate your writing skills, keep up. satellite dish tv installation Dubai

    ReplyDelete
  63. I am truly moved by her resilience and determination in the face of such immense challenges. Her ability to transform her personal struggles into a platform for raising awareness and support for others battling similar issues is a testament to the power of human spirit. The article reminds us that even in our darkest moments, we have the capacity to find hope and make a positive impact on the world.
    sienu griovimas

    ReplyDelete
  64. well to be honest i have read this story twice and it is really amazing keep up sharing these wonderful stories with us. apply for dubai visit visa

    ReplyDelete
  65. This heart-wrenching journey of Isabeau and her family is a testament to the incredible strength that can emerge from the darkest of moments. The love and support they received from both familiar faces and strangers alike are a reminder of the kindness that exists in the world, even in the face of overwhelming challenges. Isabeau's resilience and the dedication of the medical staff who never gave up hope truly inspire us all.

    ReplyDelete
  66. Abogado Trafico Fredericksburg Va
    The story of Isabeau Hope Goodman is a captivating exploration of personal growth and self-discovery, capturing universal elements of resilience and self-discovery. The narrative's unique title and vivid descriptions make it relatable to a broad audience. The structure and pacing enhance the flow, and key themes provide readers with takeaways or reflections. Encouraging reader sharing could foster community and discussion.

    ReplyDelete
  67. Great read! Really insightful and informative. Looking forward to more content like this. Keep up the good work abogado baltimore flsa

    ReplyDelete